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Answering this question as a layperson, much less without the benefit of diagnostic reports and images, is a touchy subject. To be frank, my parents lived this. I lived this. We were forced to make our best guess.
VIIGILANCE, SKEPTICISM, AND PATIENCE HELP QUERIES AND UNDERSTANDINGS
That said, the statistics would say it’s a reasonable guess to answer with “your baby has a Combined Vascular Malformation“; not forgetting to add the term Congenital.
More specifically your baby has a combination of interactive malformations in their Capillaries, Lymphatic Vessels, and Veins. And having relative complications with other body systems and components is not out of the ordinary.
Sometimes babies also have developmental interactions that include the Arteries, and/or the small arteries in Arteriovenous Malformations or Fistulas.
Terms like Port Wine Stain or Hemangioma don’t bode well for getting proper focus on today’s diagnostic classifications.
As it should be, the final word comes from the physician-scientist who discerns between “differential diagnosis” every day using comprehensive genetic tests and radiological imaging.
When medical science explains the wide diversity of interacting symptoms and syndromes there are many diagnostic classifications. You may have already heard about some of these. we developed a chart, a sore thumb chart1 that cross references Capillary, Lymphatic, Venous, and Arteriovenous Symptoms with the most frequent Classic Syndromes. Hop it helps with comparing and contrasting, with creating diagnostic lines. Your feedback is always welcome.
more . . .
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