_2. Are there doctors who are able to diagnose and help my baby ?

ABOVE IS AN IMAGE ONLY – MEANT TO SHOW PROPER CREDIT FOR THE WORK PRODUCT REFERENCED BELOW
[actual link to Independent Search Engine is below]

INDEPENDENT SEARCH ENGINE 1OUR RESEARCH – HELPING HANDS 2
US NEWS DOCTOR SEARCH FOR
MEDICAL FACILITIES & PRACTITIONERS
WE KEEP LOOKING FOR MORE DOCTORS
ON A COMMUNITY TO COMMUNITY BASIS

1 the best independent Medical Provider Locator in the United States we have found.

2 Independent of our ongoing research to build a community by community database of more and more available doctors, Bill had been gathering referrals through 2011 from pen pals. One of the support groups requested he publish these on their website; he did. In 2013 Bill requested that this information NOT be subject to membership and made readily available on the public side of their webpage.

In the same spirit of transparency and public awareness Bill upgraded his work from a spreadsheet to a full blown open source medical directory- today it is called Helping Care for Born Rare. Bill is working on restoring it to full use and expanding it for use by the entire world. It also will be an archive for the entire spectrum of caregivers, service providers, and such. It is online in pre-beta form for early use to gather in what should be a 1,000 contact database if we all chip in and take about 15 minutes to add in our doctors. Let’s do this for the next mom and dad so they don’t struggle as we did to locate experienced practitioners and medical facilities. This online resource differs from “providers” listed in our Library here in that here we are far more expansive. We gather in plausible resources and seek to have these people self-certify what their practice is and doses. Helping Care for Born Rare is intended to be a more vetted Directory based on the personal experience of the person adding in their medical team.

note:
REGARDING OUR UPADATED MEDICAL PROVIDER
ROSTER, WE’RE LOOKING FOR CONTRIBUTING EDITORS
FROM ALL COUNTRIES AROUND THE WORLD TO
BREAK OUR U.S. (AMERICAN) CENTRIC INFORMATION

This is Dr. Daoud, the physician who handles our healthcare. You will not find him in any medical provider search using a KTS/KTWS filter. He is a doctor of Internal Medicine. But, he knows KTS because Bill walked into his office and found him a doctor of curious and compassion. Said to preface any doctor search – a shield on the door, a claim to have specific expertise, is so often not good enough.

That said, the 1st link above is the most comprehensive independent Medical Provider search engine in the United States. It has a pertinent “specialty” called Vascular & Intervention Medicine. It’s a start.

As regards the 2nd link above, Bill, about a decade ago produced a directory of KTS/KTWS clinics/hospitals and KTS/KTWS experienced physicians. He started with searches via State Medical Boards and other databases and sent emails out in order to locate as many resources by individual State as he could.

Bill is repeating this effort one more time. His work product is published herein – it’s a short list today which will grow.

Please feel free to add to it. send us your references and we will include these. Also, let us know if you wish to show yourself as the referring person. We have used first and last names, as well as first names only. It’s very comforting to know that physician references are from personal experiences.

Dawne & Bill

US NEWS DOES CONSUMER REPORTING ON A GRAND SCALE

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